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'You can just get it from Wikipedia' : a qualitative exploration of the attitudes, perceptions, and use of Wikipedia as a source of health information by middle-aged and older adults

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“YOU CAN JUST GET IT FROM WIKIPEDIA”

A QUALITATIVE EXPLORATION OF THE ATTITUDES, PERCEPTIONS, AND USE OF WIKIPEDIA AS A SOURCE OF HEALTH INFORMATION BY MIDDLE- AGED AND OLDER ADULTS

Martijn Huisman, Daniël Biltereyst, & Stijn Joye / 06.02.2020 / Etmaal 2020

VAKGROEP COMMUNICATIEWETENSCHAPPEN

ONDERZOEKSGROEP HEALTH, MEDIA & SOCIETY (HM&S)

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▪ Wikipedia has become a key

component of our online information infrastructure.

Popular source of information, including health and medical affairs

(Shafee et al., 2017). Average of 170 million page views per month.

▪ Surprisingly little is known about

Internet users’ attitudes towards and perceptions of the online

encyclopaedia as well as how and why they use Wikipedia.

A large body of research

examines Wikipedia’s factual accuracy and completeness

Heilman et al., 2011; Mesgari et al., 2015; Okoli et al., 2014; Shafee et al., 2017.

Studies taking a user-centric perspective to Wikipedia are sparse. The overwhelming majority examines the

perceptions and use of Wikipedia by students

Blikstad-Balas, 2016; Colón-Aguirre &

Fleming-May, 2012; Head & Eisenberg, 2010; Lim, 2009; Macias, Lee, &

Cunningham, 2018; Menchen-Trevino &

Hargittai, 2011; Metzger, Flanagin, &

Medders, 2010; Rowley & Johnson, 2013; Selwyn & Gorard, 2016; Yaari, Baruchson-Arbib, & Bar-Ilan, 2011.

HEALTH AND MEDICAL INFORMATION ON WIKIPEDIA

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Literature: self-perceived lack of skills, literacy, and confidence as Internet users, difficult to assess the credibility of OHI, anxious about upsetting their relationship with the doctor.

Literature: older Internet users might be more hesitant to use Wikipedia than younger generations; more worried about the open character of the encyclopedia and the credibility of its information.

THE PRESENT STUDY

▪ Investigates the attitudes, perceptions, and use of Wikipedia as a source of health and medical information by middle-aged and older adults (50-80) in the Belgian Flanders region.

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DATA & METHOD

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• 40 in-depth qualitative interviews (Ghent)

• Young older adults (50-64) & old older adults (65-80).

• Heterogeneous group in terms of age, gender, and education.

• Diagnosed health conditions as well as healthy individuals.

• 18 men / 22 women

• Youngest participant 51 y.o., oldest 80 y.o. (group average 64.98).

• 31 respondents used the Internet to find health information.

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POSITIVE PERCEPTIONS, BUT LIMITED KNOWLEDGE

▪ Some respondents critical, but the majority expressed positive attitudes towards Wikipedia.

▪ However, both critical and uncritical views rooted in limited factual knowledge of how the Wikipedia works.

▪ Respondents knew little about how information on Wikipedia is created, curated,

and edited, and few respondents were aware of Wikipedia’s editorial policies,

protocols, and other quality control measures.

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SIX KEY QUALITIES AND CHARACTERISTICS

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Convenience (easy, quick) Coverage

Currency (up-to-date) Comprehensibility

Conciseness (to the point) Familiarity

Six key qualities and characteristics

which make Wikipedia an attractive source of health and medical information.

Reported in previous studies, but for the first time demonstrates that these

factors together contribute to the

attractiveness of Wikipedia as a source of

health and medical information for older

generations of Internet users.

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WIKIPEDIA ULTIMATELY PLAYS A LIMITED ROLE

Respondents use Wikipedia mostly to only obtain basic facts and general or background health and medical information.

Most participants stated that they did not consider Wikipedia as

‘gospel’ or necessarily 100 percent true: they do not blindly trust and use Wikipedia and appeared aware of credibility issues.

Respondents would never diagnose or treat themselves based on online health and medical information, including information obtained from Wikipedia. Specific or personal information, serious health

issues, clarification of information found on the Internet → visit the

BASIC FACTS

LIMITED TRUST

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CONCLUSIONS

While Wikipedia is a popular source of health and medical information, it appears to play a limited role in the health management and

decision-making practices of respondents.

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Given the limited and rudimentary knowledge of Wikipedia’s workings, and the fact that Wikipedia wants to be a “key public health information tool”

(Shafee et al., 2017), Wikipedia might attempt to better explain how it operates and how health and medical entries are created and edited.

Novel because of its qualitative approach and exploration of an

understudied target audience, this study contributes original insights as

well as nuances to prior Wikipedia user-centric studies.

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THANK YOU

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