Appendix%25206%2520-%2520PowerPoint%2520Slides

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Taking the Caregiver Guidelines Off the Shelf: Mobilization Toolkit

Presenter’s Name City, Province

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Welcome and Introduction

About the presenter.

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Presentation Overview

1. Welcome

2. What’s it like for caregivers these days?

3. Guidelines Overview:

The why, what, and how?

4. From Guidelines to Action 5. Discussion and Questions 6. Wrap–up

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A Family Caregiver

Family caregivers provide care and assistance for spouses, children, parents, extended family members and friends who are in need of support because of age, disabling medical conditions, chronic injury, long term illness or disability.

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Do you know…?

What percentage of Canadian adults provide care to a family member, friend or neighbour living with a mental illness?

a) 0.5%

b) 1.6%

c) 4.8%

Answer:

b) 1.6%

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The Data on Family Caregivers in Canada – General

28% of Canadians have provided care to a friend or loved one 45% provide care for more than four years

60% must also juggle the demands of paid work 27% lost income due to caregiving responsibilities 55% felt worried or anxious over caregiving duties

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The Data on Family Caregivers in Canada

Mental health problems such as depression, schizophrenia, and bipolar disorder are the leading reason for a parent to provide care to a child (23%)

62% of parents providing care for children are caring for adult children with chronic illness or disability, including mental illness

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Impact: Psychological and Physical

Impacts greatest for caregivers of children and spouses

• 51% of caregivers of children and 46% of spouses reported at least five symptoms of psychological distress

• This compares with 30% of those caring for their parents and 8% caring for a grandparent

• More likely to sustain an injury while providing care

Source: Statistics Canada, 2012

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Impact: Financial

One-in-five caregivers (19%) received financial support in 2012; most common sources were family and

friends (12%), government programs (7%) and federal tax credit (5%)

Caregivers of children (28%), spouses (20%) were more likely to experience financial difficulties

Sources: Statistics Canada, 2012; Tsimicalis, A., 2010

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What’s it like for caregivers these days?

Factors that affect a caregiver’s experience:

• historical and current experience of the person they are caring for

• own age, health, location

• employment status

• gender

• culture

• language

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What’s it like for caregivers these days?

Common caregiver priorities and needs:

• relative’s quality of life

• recognition and respect for their caregiving role

• information and opportunities for building skills

• recognition of personal needs

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Evolution of the Guidelines

• The Mental Health Strategy for Canada called for better supports, increased access to respite care and more flexible work policies for caregivers

• It recognized the role of caregivers in facilitating recovery and their valuable input to care planning

• The Family Caregivers Advisory Committee (FCAC) was created to provide advice on caregiving-related issues across all areas of the Mental Health Commission’s work

• The development of the Guidelines was initiated by the FCAC, as a blueprint for caregiver support services across the country

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Guidelines Overview: the “Why” (Purpose)

• Guide system planners, policy makers and service providers

• For planning, implementing and

evaluating mental health care services

• Recognize and address the unique and urgent needs of family caregivers

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Guidelines Overview: the “How”

• Led by members of the former Family Caregiver Advisory Committee

• Development: literature review, consultations with caregivers, people with lived experience and service providers

• Iterative process among MHCC staff, academic consultant and Committee.

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Guidelines Overview: the “What”

Released in 2013, the Guidelines present a vision and blueprint for a comprehensive, principle-based, evidence-informed system of care that supports family caregivers to provide the best possible care to adults living with mental illness while maintaining their own well-being.

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41 recommendations in 5 categories

Integrating Family Support into Mental Health Services Integrating Family Support into Mental Health Services

Training and Support for Mental Health Service Providers Training and Support for Mental Health Service Providers

Government and Policy Government and Policy Intersectoral Partnerships Intersectoral Partnerships Public Awareness

Public Awareness

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For consideration when planning services

• Family information needs on accessing services

• Addressing stigma

• Diversity of families

• Cultural competency / safety

• Challenges of rural and remote families

• Life course, roles and relationships

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Factors to facilitate transformation

• Families participate in reviewing, planning and evaluating services

• Increase resources for family caregiver support programs

• Service provider practice guidelines on working with families

• Increase community capacity to support families

• Create dedicated family peer support and coordinator roles

• Refer family caregivers to caregiver support organizations

• Research effectiveness of family caregiver support and services

• Strike a cross-sectoral task force to translate Guidelines into action plan

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Discussion questions:

How could these Guidelines be used in your own work?

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The Way Forward

Working to improve supports for family caregivers will take a collaborative effort.

• How can we work together?

• Next steps

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Questions?

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Thank you!

Name, title, email address

For more information on the Guidelines, you may also contact MHCC at [email protected]

This presentation was based on the Guidelines developed by the Mental Health Commission of Canada but does not necessarily present the views of the MHCC.

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More slides on the history of the Guidelines can be inserted in to the presentation if you think your audience will be interested in this information.

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Mental Health Strategy for Canada

• A Strategy for all people in Canada

• Built on federal/provincial/territorial initiatives

• Establishes common priorities

• Ambitious but practical

recommendations for action

• Adaptable in each jurisdiction

• Input from thousands of Canadians and from governments across the country

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Six Strategic Directions

1. Promoting mental health and preventing mental illness and suicide 2. Fostering recovery and upholding rights

3. Providing access to the right services, treatments and supports 4. Reducing disparity and addressing diversity

5. Working with First Nations, Inuit and Métis

6. Mobilizing leadership and fostering collaboration

To learn more about the Strategy visit: http://strategy.mentalhealthcommission.ca/

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Caregivers and the Strategy

The Strategy recognizes that caregivers are:

• Integral to recovery and well-being

• Central to planning and facilitating care

It recommends that service systems:

• Seek to learn from caregivers to improve service delivery

• Encourage caregivers to advocate for their loved ones

Calls for better supports, increased access to respite care and more flexible work policies

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Principles and Values to Help Guide Policies

Individual: engagement, respect, choice and self determination, distinct needs, sustainability.

System level: caregiver inclusion, accessibility, diversity, sustainability, collaboration, evidence informed, fairness and equity, recovery focused, mental health promotion.

Caregiver policy lens to help plan and design services based on these values.