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Health-related Quality of Life, social insertion and participation seven years after severe childhood Traumatic Brain injury:

Results of the TGE Prospective Longitudinal study

Bourse France Traumatisme Crânien – SOFMER Lauréat 2018

Hugo CÂMARA-COSTA

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• Aims

- to prospectively study intellectual, behavioral and psychosocial functioning following childhood severe TBI over 7 years postinjury,

- to examine the factors influencing outcome and change over time.

• Method

- TGE cohort: 65 children (66% ♂) assessed at 3, 12, 24 months and 7 years postinjury;

- Matched control group at 7-years follow-up;

Measures

. Wechsler Intelligence (WISC-IV and WAIS-IV) and Memory (CMS, MEM-IV) scales;

. Glasgow Outcome Scale Extended (Gos E Peds/Gos E);

. Pediatric Quality of Life Inventory (PedsQL) and Multidimensional Fatigue (MFS);

. Behavior Rating Inventory of Executive Function (BRIEF);

. Child and Adolescent Scale of Participation (CASP);

. Care and Needs Scale (PCANS and CANS);

. Age appropriate versions of the Child Behavior Checklist (CBCL, YSR)

(3)

• Results

- Compared to controls, childhood TBI patients 7-years post injury reported : - Lower overall HRQoL;

- Increased levels of fatigue;

- Specific association between School Functioning (HRQoL) and Cognitive fatigue;

(4)

Health-related Quality of Life, social insertion and participation seven years after severe childhood Traumatic Brain injury:

Results of the TGE Prospective Longitudinal study Thank you

Bourse France Traumatisme Crânien – SOFMER Lauréat 2018

Hugo CÂMARA-COSTA

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