OCTOBER 26, 2021 - 2.00 / 7.15 PM (CET TIME)
Facebook Live Program of the day
The Amyloidosis Alliance hereby invites you to take part in the first ever World Amyloidosis Day, by joining us for one of the online events taking place worldwide on October 26.
Éric-Emmanuel Schmitt shall present the first session as well as the ''My AmyloStory'' miniseries, which will serve as a window into the life of amyloidosis patients. Professors Julian Gillmore and Laura Obici, both recognised worldwide as experts on the disease, shall explain what amyloidosis is, and what forms it can take. Experts and patient association representatives from all over the world will explain what challenges they face, what hopes they harbour and what their everyday life is like.
The first session shall be followed by four mini-group sessions, each dedicated to one of the four forms of amyloidosis.
You will find below the details of the schedule.
2 p.m to 3.30 p.m. : Introduction
Eric Emmanuel Schmitt will introduce the World Amyloidosis Day and will make the presentation of the serie "My Amylostory" Season 1
Pr Julian Gillmore from UK and Pr Laura Obici from Italia will do an overview on Amyloidosis
Giovanni D’alessio, Fabio Almeida and Jean-Christophe Fidalgo , the members of the board will make the presentation of the Amyloidosis Alliance.
A tribute will be paid to M. Koenraad Verhagen A question and answer session will follow
Pr Giovanni Palladini president of the ISA will make the conclusion of this first part.
Join? On a Facebook Live available on the @WorldAmyloidosis page : https://www.facebook.com/WorldAmyloidosisDay and on the @AmyloidosisAlliance page: https://www.facebook.com/AmyloidosisAlliance
3.30 p.m to 3.45 p.m. : Interview of Mr Edgar Morin
Mr Edgard Morin: "directeur de recherche émérite au CNRS": exceptional interview.
Join? On a Facebook Live available on the @WorldAmyloidosis page : https://www.facebook.com/WorldAmyloidosisDay and on the @AmyloidosisAlliance page: https://www.facebook.com/AmyloidosisAlliance
Webinars sessions
3.45 p.m to 4.45 p.m. : Highlight on AA-Amyloidosis
Pr Julian Gillmore from UK and Pr Sophie Georgin-Lavialle from France: focus on the different causes of AA- Amyloidosis
AA Amyloidosis: doctors and patient’s perspectives Questions and Answers
Join ? Registration (for free) needed, via the link: https://zfrmz.com/eSKk4qIzdw4p18UNRwcH
3.45 p.m to 4.45 p.m. : Highlight on H-ATTR Amyloidosis
Dr Vincent Algalarrondo from France and Giovanni d’Alessio from Italia will be the chairmen.
Pr David Adams from France and Dr Marcia Waddington-Cruz from Brazil: will focus on h-ATTR Amyloidosis Doctors and patient’s perspectives in different countries Brazil, France, Africa, Venezuela will be presented.
Questions and Answers session
Join ? Registration (for free) needed, via the link: https://zfrmz.com/nMavcN9eNRIrevzb5kWH
3.45 p.m to 4.45 p.m. : Highlight on wt-ATTR Amyloidosis
Pr Pablo Garcia-Pavia from Spain will be the chairmen.
Pr Thibaud Damy from France and Pr Fabio Fernandes from Brazil will focus on WT-Amyloidosis.
Doctors and patient’s perspectives in Brazil and France will be presented.
Questions and Answers session
Join ? Registration (for free) needed, via this link: https://zfrmz.com/FyQDKxe3q80sVXWkUVRb
5 p.m to 7.15 p.m. : Highlight on AL Amyloidosis
Prof.dr. Monique Minnema, will talk about Daratumumab as therapeutic monoclonal antibody and the Andromeda study;
Barbara Mazzolini will be sharing her experience with Daratumumab as a patient,
Prof.dr. Angela Dispenzieri gives an update about supportive care & symptom management;
Prof.dr. Ashutosh Wechalekar informs us about new developments in drug and new immunotherapies.
Join ? Registration (for free) needed, on ZOOM webinar via this link: http://urlr.me/9wbMt
For whom? Interesting for patients and their families, health professionals and authorities, scientists, pharmaceutical companies and everyone interested in Amyloidosis
When ? October 26, 2021 from 2 pm to 7.15 pm (Central European – Amsterdam Time)
For information about World Amyloidosis Day www.worldamyloidosisday.org or get in contact with the organization in your own country.
Follow the activities and support us on social media:
Facebook @WorldAmyloidosisDay #WorldAmyloidosisDay Twitter @AmyloidosisDay #WorldAmyloidosisDay
