Pilot study about the efficacy of the ensemble (together) program: a tailored intervention for informal caregivers of people with severe psychiatric disorders

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Pilot study about the efficacy of the ensemble (together) program: a tailored intervention for informal caregivers

of people with severe psychiatric disorders

Hélène Wilquin, Léa Plessis, Shyhrete Rexhaj

To cite this version:

Hélène Wilquin, Léa Plessis, Shyhrete Rexhaj. Pilot study about the efficacy of the ensemble (together) program: a tailored intervention for informal caregivers of people with severe psychi- atric disorders. 28th European Congress of Psychiatry. EPA 2020, Jul 2020, e congress, Spain.

�10.1192/j.eurpsy.2020.6�. �hal-03151265�

Pilot study about the efficacy of the Ensemble (Together) program: a tailored intervention for informal caregivers of people with severe

psychiatric disorders LPCPP EA 3278

Hélène Wilquin ¹ ; Léa Plessis ¹ ; Shyhrete Rexhaj ²

1

Aix Marseille Univ, Laboratory of Clinical Psychology, Psychopathology and Psychoanalysis, Aix-en-Provence, France

2

La Source, School of Nursing Sciences, HES-SO University of Applied Sciences Western Switzerland, Lausanne

INTRODUCTION

The scientific literature has shown negative consequences on the everyday life of informal caregiver of people with severe mental illness. These informal caregivers have a lower health state and reduced quality of life, which are associated with higher caregiver burden as well as poorer patient outcomes (Moller-Leimkuhler et al. 2005; Bauer et al., 2012). Based on this evidence, the Ensemble (Together) program has been designed to promote the well-being of these informal caregivers (Rexhaj et al. 2017). It is characterized by a brief individualized intervention (5 meetings) focusing on the specific needs of the informal caregivers of people with severe psychiatric disorders. The Ensemble (Together) program completes other psychoeducation programs. The present study aims to evaluate the efficacy of the Ensemble (Together) program when compared to support as usual (SAU).

REFERENCES

Rexhaj, S., Leclerc, C., Bonsack, C., Golay, P., & Favrod, J. (2017). Feasibility and Accessibility of a Tailored Intervention for Informal Caregivers of People with Severe Psychiatric Disorders: a Pilot Study. Front Psychiatry, 8, 178.

EXPERIMENTAL DESIGN : a Randomized Control Trial

DISCUSSION-CONCLUSION

These preliminary results showed that the psychological health of informal caregivers following the Ensemble program is improved at the end of the intervention, whereas is not for those following the SAU. Overall, these results suggest that individualized brief interventions for informal caregivers of people with severe psychiatric disorders are particularly pertinent to improve their psychological health and, by boomerang effect, could improve patients outcomes.

N= 9

Together Group

Support as Usual (SAU) Group

Voluntary informal caregivers of

people with severe psychiatric

disorders

N= 18

ZARIT SCORE >20 N= 9

53 ±10.5 years old Man =1, Parents =6, Daughter=1, Sister=1

61.6 ± 10.5 years old Man =2, Parents =8, Sister=1

Together Program Focus

group Together Program T0 Assessment T1 Assessment

5 meetings

04/19 06/19 09/19

2 months 2 months

5 meetings

SAU Group Together Group

PARTICIPANTS

The 2 Groups of informal caregivers were assessed through 3 instrument tools in 2 steps : T0 = pre-intervention and T1 =post-intervention.

Ø Zarit scale (ZS): Enables to measure the caregiver’s burden and collapse in caregiving; Hébert et al., 1993

Ø LOT-R scale [Life Orientation Test – R)] ; Enables a self-evaluation of one's optimism using a five-point Likert scale; Scheier et al., 1994 – 10 items

Ø BSI [Brief Symptom Inventory]: a brief psychological self-report symptom scale 53 items ; Derogatis & Melisaratos, 1983

We run paired t-tests to describe the differences between measures pre- and post-intervention for each group individually (Together versus SAU)

MEASURES in T0 and T1 and STATISTICAL ANALYSES

TOGETHER

GROUP t df p Cohen's d

T0_ZARIT - T1_ZARIT 2.143 8 0.065 0.714 T0_OPTIMISME - T1_OPTIMISME -4.243 8

-1.414 T0_BSI_Total - T1_BSI_Total 2.244 8 0.055 0.748

SAU GROUP t df p Cohen's d

T0_ZARIT - T1_ZARIT 0.977 6 0.366 0.369 T0_OPTIMISME - T1_OPTIMISME 1.486 6 0.188 0.562 T0_BSI_Total - T1_BSI_Total 1.783 6 0.125 0.674

RESULTS THE TAILORED INTERVENTION

FOR INFORMAL CAREGIVERS

Participants to the Together group showed significant improvements in the Global Severity Index based on the BSI scale (T0 : 0.86 ± 0.7 ; T1: 0.34 ± 0.35); this difference was not significant for the SAU group (T0 : 1.15 ± 0.7; T1: 0.81 ± 0.5). Informal caregivers were also statistically more optimistic regarding their future at the end of the Together program (T0: 14 ± 4.76 ; T1: 16.8 ± 4.5) whereas they were not after the end of the SAU (T0:

18 ± 4.65 ; T1: 16.7 ± 4.3). Participants to the Together group also seemed to experience a lower level of burden in post intervention since the statistical difference tend to be significant on the ZARIT score (T0: 43 ±16 ;T1: 29 ± 20) (SAU : T0: 49 ±15 ;T1: 44 ± 11)

helene.wilquin@univ-amu.fr

Madrid, Spain, March 2020

The 28th European Congress of Psychiatry (EPA 2020)