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MEASURING THE CONSEQUENCES OF ILLNESS

Philip H. N. Wooda

This article will concentrate on the International Classification of Impairments, Disabilities, and Hand- icaps (ICIDH) (1) as a means for measuring the im- pact of illness and its consequences. The ICIDH, for which I was largely responsible, was published in 1980. Looking back, it now feels as if this was the lighting of a very slow fuse. At first the ICIDH seemed to attract very little interest, but now there are encouraging indications that it is being used in different applications more and more widely. Slow uptake has been due to a variety of difficulties, some of which this article will examine. First, though, it is necessary to describe how the classification came into being.

Background

The earliest efforts seeking standardization for the recording and analysis of health-related information were confined to cause-of-death statistics. Even in 1856, however, Farr recognized that it was desirable

"to extend the same system of nomenclature to diseases which, though not fatal, cause disability in the population" (2). The main thrust of international cooperation was the development of the Inter- national Classification of Diseases (ICD) (3), and in response to Farr's aspirations efforts were made to integrate mortality and morbidity into a single classi- fication scheme-an aim that was finally realized only in the Sixth Revision of the ICD in 1948.

In the introduction to this Revision, in reviewing its application to causes of illness and disability, it was noted that "an illness varies from a minor deviation from normal health, which does not interfere with the performance of regular duties, to the chronic case which calls for bedside or custodial care for an indefinite period". Here, 40 years ago, were the forerunners of definitions of health experience in terms similar to those used in exploration of re- levant concepts in the introduction to the ICIDH.

At the same time that morbidity was assimilated fully into the ICD, the need was also felt to extend the scheme with supplementary classifications of impairments, blindness, and deafness, which formed part of the Y code. This code was reproduced unal- tered in the Seventh Revision of the ICD in 1955, but for the Eighth Revision (1965) the supplementary classification was restructured. On this occasion the Revision Conference noted that "the classification of impairments in categories Y40-88 was seen as a parallel code, collecting in one group a number of conditions scattered throughout the main code. It had been used by some countries in health surveys and the Conference, appreciating that such surveys

• Emeritus Director, Arthritis and Rheumatism Council Epidemio- logy Research Unit, and Honorary Professor of Community Medi- cine, University of Manchester, United Kingdom; Consultant to the World Health Organization, Geneva, for the development of the ICIDH.

Wld hlth statist. quart., 42 (1989)

were likely to increase, considered that it would be useful if such a classification appeared in the Manual of the ICD for optional use"

So by 1965 the principle of a separate but parallel code was accepted. Unfortunately in the process of editing the Eighth Revision for publication the op- tional classification of impairments was inadvert- ently omitted. The Revision Conference had certainly been prescient when it anticipated that surveys of impairments were likely to increase. Changes in the burden of disease were becoming more evident, with chronic and disabling conditions assuming a dominant position in many parts of the world. Omis- sion of the Y code and consequent lack of a system to cope with data on these aspects thus emerged as a serious limitation, and there was increasing de- mand for an appropriate classification scheme to be developed in conjunction with the Ninth Revision of the ICD. Herein lay the immediate pedigree of the ICIDH, but certain aspects command further examin- ation.

General considerations

After mortality the most burdensome consequence of illness is disablement. Implicit in the deliberations on health-related information was an assump- tion-that !CD-derived data, with their orientation towards the underlying causes of medical conditions or diseases, were not adequate for revealing the nature and scale of disablement in such a way as to illuminate policy development and promote im- proved services for those with disabilities. How justi- fiable was this assumption?

More than 10 years ago WHO estimated that in excess of 450 million people throughout the world were disabled, representing a prevalence ratio of 1 in 10. Fig. 1 shows the world burden of disability, based on WHO's estimates of the proportions ac- counted for by various of the major causes. As reported previously (4), I found it useful to inflict my own taxonomy on these data by dividing the whole into three groups-developmental, acute, and chronic. This is more helpful when considering the potential for prevention and control. Some 64% of the total is accounted for by developmental and acute problems, a large part of which could be prevented by the application of conventional public health insights. This conclusion is reinforced when it is recalled that one-third of those affected are children, and that four-fifths of the disabled live in developing countries. Much the biggest challenge on a global scale, therefore, is to find out why possible action is not taken, and standard ICD data serve this function fairly well.

The remainder of the burden is made up of chronic problems, which are less straightforward. The very designation "chronic" reflects that at present such

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FIG. 1

MAIN CAUSES OF DISABILITY IN THE WORLD PRINCIPALES CAUSES D'INCAPACITES DANS LE MONDE

Developmental Developpementales

wt-0 89652

conditions cannot readily be arrested, and in the main they are not amenable to simple measures for primary control or prevention. This has two impli- cations. Firstly, models of causality tend to be com- plex, invoking the interplay of multiple factors; it is because no one factor appears to be dominant in its effect that primary control measures are generally difficult to identify. Secondly, extended time scales mean that diagnosis, whilst still important, tends to be overshadowed by the existential problems of sustaining everyday life in an acceptable manner. In turn this means that the concept of disease accounts for an insufficient part of the variance in health status, so that !CD-derived data have only a limited power for revealing the nature and scope of the challenge. Herein lay the basis for concluding that

!CD-derived data were not adequate to the problem.

That said, and pending wider availability of ICIDH- based data, the value of rearranging ICD categories according to their disabling potential rather than the nature of the underlying morbid anatomical pro- cesses should not be neglected (5).

What gave further stimulus to development of a scheme for organizing data complementary to the approach adopted in the ICD has been broader alterations in society as a whole. It is in the domain of chronic illness, especially, which in this context includes conditions present at birth or resulting from accident or injury, that the nature of challenges confronting medical practitioners, scientific invest- igators, health service administrators and policy makers has been undergoing profound change. This has come about for five main reasons: (i) extension of health service provisions to increasing pro- portions of the population; (ii) escalating costs for such provisions; (iii) demographic shift towards older people; (iv) a concomitant alteration in the morbidity burden; and (v) emerging social and politi-

Chronic Chroniques

Acute Aigues

cal awareness of disadvantage in society. Although it was largely in response to these that requests for something like the ICIDH began to be expressed, changes in the nature of illness experiences have themselves contributed to increased demand on health services, so that it is necessary to take ac- count of problems of scale as well.

The implications of the emergence of chronic illness as a major problem have posed a number of chal- lenges for medical practice; these were identified in an earlier paper (6). Such features made their own contribution to growing demand for appropriate care services. Uncertainty and ignorance about the nature and scope of the difficulties were evident, very much due to failure to study the outcomes of disease in such a detailed, scientific, and sophisticated manner as has been the case with diagnosis and etiology.

However, the situation was compounded by lack of a conceptual basis for appreciating disease con- sequences, and by confusion in the terminology used in such contexts. This all served to cloud the messages transmitted to policy makers and pol- iticians, at the same time offering justification for evasion of the problems posed by disablement be- cause of unknown financial implications. Yet the need to take practical action was still pressing.

Scope of the ICIDH

A complex challenge therefore had to be recognized.

Before proceeding further it is relevant to recapitu- late what is axiomatic in taxonomy, that the criterion of utility is paramount (7). In other words, what matters is whether the exercise accomplishes its objectives and suits the purposes for which it was designed. Although what could be regarded as a classification's face validity has some practical rele-

Wld hlth statist. quart., 42 (1989)

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vance, theoretical and ideological issues are of sec- ondary importance. Here it is important to em- phasize that, in contrast to the relatively limited scope of the ICD, in taking stock of the ICIDH a number of different planes or levels have to be considered. These correspond to different purposes or objectives when the ICIDH is used as a resource.

This is not the place to undertake exposition of the conceptual framework developed, or to attempt to clarify linguistic usage; for these purposes standard sources should be consulted (1, 6, 8). However, the essence of the conceptual framework adopted is critical, and so it is reproduced here for convenience:

DISEASE OR DISORDER - - , IMPAIRMENT -"""? DISABILITY -"""? HANDICAP.

First it was necessary to establish basics, which involved a return to the fundamental dimensions of experience and an examination of relevant concepts in a taxonomic or interrelational mode of thought (9), the results of which are noted above. In many ways the problems associated with disable- ment present ambiguities that are encountered with other human predicaments, such as old age, alcohol- ism, anxiety and loneliness. The ICIDH offers a means of resolving some of the ambiguities, at least in regard to disablement. A specific practical prob- lem is that service agencies responsible for respond- ing to needs in this area are often administratively separate and influenced by different historical tradi- tions, and yet as far as chronic illness is concerned it is unrealistic to expect a correspondingly neat sepa- ration between the medical and social aspects of an individual's needs. The particular relevance of the conceptual distinctions noted above is that they correspond to the obligations of different sectors or components of overall arrangements for care. Thus impairments are primarily the concern of medical services, disabilities of rehabilitation facilities, and handicaps of social welfare provisions and broader areas of social policy, such as those concerned with education, employment, transport and housing.

It is on this plane that the ICIDH almost certainly makes its most profound contribution, as a resource for enlightenment-not that this is entirely without controversy, as will be discussed later. The ICIDH helps to stimulate and illuminate thinking about the nature of disablement, and it focuses attention on issues such as indicators, quality of life and out- 'come. At this level the ideas have been welcomed

by those involved with the education and training of health and related professionals, enabling them to present some coherence in thinking on what had formerly been rather arbitrary and disjointed topics.

What is disappointing, though, is that the thinking does not seem to have had any great penetration at the level of policy makers, and until it is assimilated at this level many of its potential benefits will not be realized. However, when the opportunity has been grasped the ICIDH has proved to be of great help, including among groups of people who themselves have disabilities (10, 11).

On a second level the detailed classification schemes for the three principal concepts serve to exemplify and expand each of those concepts. Detailed cat- egories are identified so as to facilitate structuring of data. Here is where the ICIDH most resembles the ICD, thus meeting WHO's original aspiration for a framework against which information could be or- ganized so as to illuminate the consequences of disease. Presumably rather formal statistical report- ing was what was in mind, but unfortunately nothing remotely resembling information of this

Wld hlth statist. quart., 42 (1989)

type seems to be generated on a fairly routine basis-so that in this regard the ICIDH is waiting for application in its primordial field. What was contro- versial was the idea of separate approaches to im- pairment, disability and handicap, the justification for which has been reviewed above. Differences between the nature of the concepts and the ex- periences to which they related dictated that dif- ferent taxonomic approaches be adopted for each dimension or concept. Such variations were rein- forced by the different professional contexts in which the schemes would be applied.

The impairment code did not have any significant antecedent; it endeavoured to provide an exhaustive listing of organ or system malfunction to comple- ment the exhaustive enumeration of diseases in the ICD. The disability code adopted an approach that deliberately departed from conventional assessment of activities of daily living (ADL). The latter tend to view activities in terms of their purpose or location of execution which, though having utility in the context of application, nevertheless may obscure similarities that are relevant for classifica- tion-especially if attempts are made to study inter- relationships between, say, specific disabilities and coexistent impairment (12). The handicap classifica- tion was the most original departure and differed by being constructed in the form of ordinal scaling.

Once again, pre-existent social indicators with es- tablished empirical utility were deliberately not fol- lowed, because it was thought more important to try to preserve the conceptual distinctions identified and offer a scheme which dovetailed more closely into the overall approach of the ICIDH. It was envisaged that, depending on the purpose of the application, any one of the classifications might be used on its own, either for more explicit definition of specific problems or as a tool for screening for problems in the other dimensions (i.e. others of the three con- cepts, impairment, disability and handicap). On the other hand, any two or all three of the classifications might be used in conjunction as a means for explor- ing discordances in status on different IDH dimen- sions (e.g. the way in which an individual might be severely disabled but only mildly handicapped, or mildly disabled but very severely handicapped). In other words, it should be possible to shed light on the genesis of dimensions further down the se- quence (i.e. further to the right in the interrelation- ships shown above), such as by identifying a wealth or deficiency of, for instance, family support, and to indicate what interventions or support might be needed.

Other applications

A third level can be identified when the two levels just discussed, of policy enlightenment and detailed specification, are taken in conjunction. This relates to establishing an agenda for appraisal (13), perhaps the second most important thing the ICIDH ac- complishes. By offering a fairly exhaustive listing of the major topics of concern in the single-digit cat- egories of the three codes, an agenda is established which can be used as a check list to see that every important domain of experience is covered.

This can help to remedy the problem that existing assessment schedules, such as a matrix of ADL, tend to have been developed by particular professional groups and are limited to what such groups have seen as their professional area. Very frequently, for example, schedules are drawn up in a formal re-

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habilitation facility and focus on physical capacity, while failing to indicate that mentation and be- haviour should also be assessed-these being left to professionals in those areas. Such limitations be- come especially critical when it is recalled that the largest proportion of people with disabilities live in the community and are not in regular contact with individuals from any of the professional disciplines with commitments to disability. The agenda func- tion, in contrast, serves to remind those from any background of the topic areas to be taken into account when in contact with someone with a dis- ability. For example, the customary training of com- munity nurses might not alert them to be sensitive about the full range of disabilities, intellectual, be- havioural, sensory, physical, or skill-related, and yet as the likeliest contact with someone with a dis- ability all of these dimensions ought to be assessed, at least to the extent of discovering that someone more expert in a particular dimension ought to be consulted or called in.

The agenda aspect of the ICIDH has informed the design of population surveys (14). It underpinned the organization and presentation of a guide to services for physically disabled people in a metropolitan area (15); this was welcomed by both care pro- fessionals and people with disabilities. In somewhat similar fashion the agenda has been exploited as a proforma developed by the British Paediatric Associ- ation to cover each single-digit category in the ICIDH, and then used by a British health board in the preparation of basic records for a computer register of children with special needs (M. McCulloch, per- sonal communication).

The fourth level of application of the ICIDH relates to management functions. The first challenge for man- agement is to take stock and analyse problems in order to clarify their nature, so as to indicate the types of input required to overcome or mitigate the difficulties revealed. This aspect has already been discussed at the first level, concerned with policy formulation. Data are then needed which are re- levant to the policies adopted, to which the second and third levels relate. Finally, when policy has been implemented, management will then wish to eval- uate the appropriateness and effectiveness of care processes.

As discussed near the beginning of the introduction to the ICIDH (1), the simplest requirement of a health care or disability-related system is that some benefi- cial change in the individual's situation or status should result from contact with the system. Whilst ICD categories can be used for evaluation of out- come with acute or curable disease, in the form of recovery or death, only ICIDH categories have a potential to reflect change after contact with the system in chronic or disabling disorders. Again, though, there is no record that anyone has used, let alone even appreciated, the role that the ICIDH could play in developing evaluation of care services.

Neither, with a single exception (16), has the pos- sibility of using the disability code in a reciprocal fashion for specification of environmental demands been exploited, even though the results could be matched with an individual's disability profile; this could then facilitate screening in such contexts as job placement in vocational rehabilitation, school placement, rehousing the disabled, and identifying vulnerability in the elderly.

Problems with the ICIDH

The fifth level at which the ICIDH has to be consid- ered concerns its theoretical purity or appropriate- ness. Three years after the ICIDH was published a critique by a philosopher was issued (17), question- ing both the validity of the basic distinctions made and whether the components were causally related in the manner suggested. It was flattering that the ICIDH merited serious consideration by a phil- osopher, the basis for the challenge being essen- tially linguistic. However, without wishing to appear cavalier I would return to the point made earlier-the justification of a taxonomy is whether it serves its purpose, and growing use of the ICIDH despite various difficulties (not in the main related to the linguistic problems raised by the philosopher) attests to fulfilment of some, at least, of the purposes.

Of greater concern has been what amounts to ideo- logical challenge. On the one hand, and perhaps the most frequently encountered, has been diffidence over straying into the domain of handicap or dis- advantage, even though this is surely the most basic aim in the endeavour. This has often been justified on the supposed grounds that appropriate assess- ment schedules or survey instruments are not pro- vided in the ICIDH, notwithstanding that this was beyond both the scope of WHO's original briefing and the resources available to undertake the neces- sary developmental field work before the manual was published. The range of information required to elicit information relevant to social enquiry has also proved daunting. So, too, has the challenge of find- ing means for distinguishing between potential dis- advantage, which the handicap code is intended to reveal, and whether this is actually experi- enced-though this is surely not too difficult. Under- lying this, though, has been the perennial tendency for health professionals to overmedicalize disable- ment experience derivative, at least in part, from the individualistic focus so common in Judaeo-Christian cultures.

The latter element has been picked up by some groups of people with disabilities, who have criti- cized the ICIDH for being too individualistic. WHO wanted a scheme of classification that could be applied to data on individuals, as happens with the ICD. However, although directed at the functioning of the individual the ICIDH nevertheless does pro- vide a means for establishing the social determina- tion of disadvantage (13). On a deeper plane, though, is the danger complementary to over- medicalization, that of oversocialization (9). This per- spective often denies the relevance of the medical

condition underlying disablement, neglecting the fact that this is the spring from which disability emerges and that in all instances it accounts for a significant, even if not necessarily overwhelming, proportion of the variance in status. Such ideas are often projected to what approximates to a con- spiracy view of social interaction, seeing the dis- advantage associated with disablement as the result of social oppression (18). As a result the relevance of work in the handicap area of the ICIDH is rejected.

At the root of both these extremes is the failure to distinguish between tasks and roles. Tasks may be the prerequisite for a role, but they are not sufficient cause to be regarded as constitutive of the role; to that extent there is a causal relationship between the two, which answers one of the philosopher's criti- cisms (17). There is complex mediation between task and role, to which individual behaviour and attitudes

Wld hlth statist. quart., 42 (19891

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contribute as well as resources and social op- portunities and restrictions; these points have been elaborated elsewhere (12, 19). Failure to appreciate these subtleties encouraged many to pursue their views on social oppression by seeking a consumerist platform as the remedy in a pluralist society. How- ever, anti-welfare drifts in politics in both the United States of America and the United Kingdom, for example, have exposed the vulnerability of such rhetoric; consumerist demands face a bleak future when welfare budgets are reduced. In fact the acqui- sition of data through approaches such as the ICIDH should provide ammunition for endeavours to seek better social responses to disablement, by making explicit the extent of disadvantage or handicap.

However, the value of such data will be jeopardized if attempts are made which in effect amount to suborning the ICIDH through unquestioning incor- poration of the conspiracy view into its conceptual framework.

The way forward

Much of the progress in use of the ICIDH as a means of documenting the consequences of illness is repor- ted in other contributions to this issue, in occasional papers in International disability studies (formerly International rehabilitation medicine), and in two series of papers arising from WHO working groups;

the latter are enumerated in sources already cited (9, 12). The same sources examine some of the difficulties encountered, and common mis- conceptions about the ICIDH have also been identi- fied (13). Responsibility for two problems, though, rests with WHO. Firstly, it is only recently that the Organization has done much to increase awareness of the possibilities extended by the ICIDH, to which designation of WHO collaborating centres to pro- mote work in this area has been a welcome addition.

Secondly, many complain at what appears to be overlap between a number of items in the ICD and the ICIDH. Part of this relates to a difference in perspective. For example, incontinence is identified at 788.3 in the Ninth Revision of the ICD and it also features in the impairment code; this is not incom- patible with the ICD's intent to cover all medically- related conditions giving rise to morbidity or mortal- ity in a single coding system, but equally inconti- nence is obviously an impairment which has to feature in any enumeration of disease consequences.

Admittedly some of the overlaps could be eliminated fairly readily, by clarifying the focus of the ICD; the V Code, to be the Z Code in ICD-10, remains at least equally problematic in this regard. Some of the apparent replication could be resolved more simply, by altering the emphasis in terminology as had been done in distinguishing between certain impairments and some of their related disabilities (ICIDH, p. 33) (1). It is unfortunate that the processes leading up to the Tenth Revision of the ICD have not con- fronted these problems more systematically, so that needless duplication and perhaps attendant ambi- guity will persist for the foreseeable future.

Such considerations apart, it will probably be helpful to give an indication of how what has proved to be the most off-putting part of the ICIDH, the handicap code, can be approached. This will be done by an outline of how my colleagues and I translated the physical independence dimension of handicap for application in a community survey (20); this will be reported more fully elsewhere (21). Again, the key to the approach lay in utilizing relatively standard data

Wld hlth statist. quart., 42 (1989)

from enqumes about act1v1t1es of daily living but viewing them from the perspective of handicap so as to generate information in keeping with the com- missioning health and municipal authorities' prin- cipal concern with physical independence handicap.

Much experimentation was called for in the attempt to relate various functional difficulties to the most appropriate categories on an expansion of the phys- ical independence handicap scale that we developed.

The data base included pain and energy scores from the Nottingham Health Profile (22), although these were ultimately shown to contribute little useful to discrimination between categories. In the process it was found that many daily living activities were neutral as regards discrimination, and yet others functioned poorly for this purpose. At the end it was found that only 28 ADL variables, 41% of those originally considered, were necessary for assign- ment to categories on our expanded physical inde- pendence scale; i.e. a considerable reduction in the data needed was possible. The results were valida- ted by independent assessments relating to a sum- mary of dependence made by the interviewer and receipt of an attendance allowance (a social security benefit for those needing constant attendance for at least 12 hours by day or night). This exemplifies how at least this component of the handicap code can function for the purpose for which it was de- signed, to ascertain the circumstances of people to indicate the risk of experiencing disadvantage.

At this juncture it is opportune to emphasize a fundamental point about information. Data tend to be regarded rather narrowly and in a particular light determined by the context and format in which they were originally· collected. However, when looked at differently the same information can in fact serve to illuminate complementary aspects of a problem. The difference in perspective is accomplished by re- structuring the data; in other words, rearranging them to bring out similarities based on char- acteristics different from those which shaped the original structure of the data. Thus, as already men- tioned, if !CD-derived data are restructured according to disabling potential rather than morbid anatomy it is possible to learn something useful about dis- ability. Similarly, data on ADL gathered specifically in the context of disability can, when viewed differ- ently, also serve to reveal the potential for dis- advantage or handicap.

Up until now the ICIDH appears to have been used by only scattered and isolated individuals or groups, with the exception of participants at the WHO work- ing groups held at Voorburg (Netherlands) (referred to above). However, the basic ideas have much wider currency, having been introduced into a number of textbooks and standard reference works;

this is especially evident in Northern America. Un- fortunately those who learn of the conceptual dis- tinctions from these secondary sources remain largely unaware of the manual from which they were derived, so that practical application of the classifi- cations does not proceed apace. Part of the difficulty is that WHO publications are often far from easy to obtain, there usually being only a single main sup- plier in any country and conventional booksellers being largely unaware of the publications and how to secure them.

There does now seem to be growing awareness and utilization of the ICIDH, and initiation of WHO col- laborating centres will hopefully extend this process.

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The publication of the official French translation of the ICIDH late in 1988 (23) seems to be a watershed event in the wider application of the classifi- cations-an appropriate landmark at the bicentenary of the French Revolution. However, the development

is still really only in its infancy, because the wider implication of the ICIDH is to challenge the way in which arrangements for health care and social wel- fare are conceived at present (24), a process that has barely begun.

SUMMARY

The International Classification of Impairments, Dis- abilities, and Handicaps (ICIDH) was developed as a means for measuring the impact of illness and its consequences, although there was much delay be- fore the classifications became at all well known.

After giving an outline of how the ICIDH came into being, this article considers the basis of different types of health problem and of the potential of the International Classification of Diseases (ICD) and the ICIDH to reveal useful information on such prob- lems. The ICIDH is based on a tripartite distinction between impairment, disability and handicap. It can be used as a resource at four different levels-for enlightenment about the nature of disablement prob- lems and how they might relate to policies and services; as three detailed classification schemes to facilitate structuring of data about impairment. dis-

ability and handicap respectively; as a framework which provides an agenda for appraisal and assess- ment; and for facilitating management functions, perhaps especially the evaluation of care. Philosoph- ical and ideological criticisms of the ICIDH are dis- cussed, and means for applying what has proved to be the most controversial component or dimension, the handicap code, are illustrated. At the root of many difficulties is people's failure to appreciate that the same pieces of information can be used to illuminate complementary aspects of problems when the data are regarded from different perspectives.

Further experience along the lines currently being undertaken should not only resolve many of the difficulties, but should also encourage more wide- spread adoption of the approach underlying the ICIDH.

RESUME

Mesure des consequences des maladies

La Classification internationale des handicaps: defi- ciences, incapacites et desavantages (CIH) a ete eta- blie pour mesurer l'impact des maladies et leurs consequences, meme si beaucoup de temps s'est ecoule avant que les classifications n'acquierent une certaine notoriete. Apres avoir brievement expose les origines de la CIH l'auteur de cet article evoque la base des differents types de problemes de sante et des possibilites qu'offrent la Classification interna- tionale des maladies (CIM) et la CIH pour l'etude de ces problemes. La CIH repose sur la distinction entre deficiences, incapacites et desavantages. Elle peut etre utilisee

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quatre niveaux differents - pour donner des eclaircissements sur la nature des handi- caps et la fa~on dont ils interessent les politiques et les services; pour fournir trois systemes detailles de classification facilitant la structuration de donnees sur les deficiences, les incapacites et les desavan-

tages; comme cadre offrant un calendrier pour !'ap- preciation et !'evaluation; et pour faciliter certaines fonctions de gestion et peut-i:ire tout particuliere- ment !'evaluation des soins. Les .critiques d'ordre philosophique et ideologique adressees

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la classifi- cation sont evoquees et les moyens d'appliquer ce qui s'est avere !'element le plus controverse de l'ouvrage, le code des desavantages, sont illustres.

De nombreuses difficultes tiennent de ce que l'on ne se rend souvent pas compte que les memes ele- ments d'information peuvent servir

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eclairer des aspects complementaires des problemes lorsque les donnees sont envisagees sous des angles differents.

Une plus grande experience dans la voie actuelle- ment choisie devrait non seulement resoudre beau- coup de ces difficultes mais encourager aussi une utilisation plus generale de l'approche qui est

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l'origine de la CIH.

REFERENCES- REFERENCES

1. WORLD HEAL TH ORGANIZATION. International Classi- fication of Impairments, Disabilities, and Hand- icaps-a manual of classification relating to the consequences of disease. Geneva, WHO, 1980.

(Pour !'edition fran~aise, voir reference (17)).

2. REGISTRAR GENERAL OF ENGLAND AND WALES.

Sixteenth annual report, 1856. (Appendix, p. 75).

3. WORLD HEALTH ORGANIZATION. Manual of the inter- national statistical classification of diseases, in- juries and causes of death. Ninth Revision.

Geneva, WHO, 1977.

ORGANISATION MONDIALE DE LA SANTE. Manuel de la classification statistique internationale des ma/a-

dies, traumatismes et causes de deces. Neu- vieme revision. Geneve, OMS, 1977.

4. WOOD, P. H. N. Prospects for control. In: Wilson, Sir John (ed.), Disability prevention: the global challenge. Oxford, Oxford University Press for the Leeds Castle Foundation, 1983. (Chapter 7, p. 92).

5. BADLEY, E. M. ET AL. The prevalence and severity of major disabling conditions-a reappraisal of the Government Social Survey on the hand- icapped and impaired in Great Britain. Inter- national journal of epidemiology, 7: 145-151 (1978).

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6. WooD, P.H. N. Appreciating the consequences of disease: the International Classification of Im- pairments, Disabilities, and Handicaps. WHO Chronicle, 34: 376-380 (1980)

WOOD, P. H. N. Comment mesurer les con- sequences de la maladie: la classification inter- nationale des infirmites, incapacites et handi- caps. Chronique OMS, 34: 400-405 (1980).

7. WooD, P.H. N. Advances in the classification of disease. In: Smith, A. (ed.), Recent advances in community medicine. Edinburgh, Churchill Livingstone, 1982. (Vol. 2. chapter 13, pp. 169- 183).

8. WOOD, P.H. N. & BADLEY, E. M. People with dis- abilities, toward acquiring information which re- flects more sensitively their problems and needs. New York, World Rehabilitation Fund, 1981. (Monograph No. 12).

9. BURY, M. R. The ICIDH: a review of research and prospects. International disability studies, 9: 118- 122 (1987).

10. Report by the Committee on restrictions against disabled people. London, HMSO, 1982.

11. OFFICE DES PERSONNES HANDICAPEES DU QUEBEC. A part egale - L'integration socia/e des personnes handicapees: un defi pour tous. Quebec, OPHO, 1984.

12. BADLEY, E. M. The ICIDH: format, application in different settings, and distinction between dis- ability and handicap. International disability studies, 9: 122-125 (1987).

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14. MARTIN, J. ET AL The prevalence of disability among adults. OPCS survey of disability in Great Britain, report 1. Social Survey Division, Office of Population Censuses and Surveys. London, HMSO, 1988.

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