Article
Reference
Natural History of Vanishing White Matter
HAMILTON, Eline M C, et al. & WWM Research Group
FLUSS, Joel Victor (Collab.)
Abstract
To comprehensively describe the natural history of vanishing white matter (VWM), aiming at improving counseling of patients/families and providing natural history data for future therapeutic trials.
HAMILTON, Eline M C, et al . & WWM Research Group, FLUSS, Joel Victor (Collab.). Natural History of Vanishing White Matter. Annals of Neurology , 2018, vol. 84, no. 2, p. 274-288
DOI : 10.1002/ana.25287 PMID : 30014503
Available at:
http://archive-ouverte.unige.ch/unige:128944
Disclaimer: layout of this document may differ from the published version.
The Natural History of Vanishing White Matter
VWM Research Group collaborators
Name Affiliation
N. Abbas Al-Sannaa Dhahran Health Center, Saudi Arabia
H. Aldhalaan King Faisal Specialist Hospital, Riyadh, Saudi Arabia D. Alves Centro Hospitalar São João, Porto, Portugal
D.J. Amor Murdoch Children’s Research Institute, Royal Children’s Hospital, Melbourne, Australia
R. Appleton Alder Hey Children's Hospital, Liverpool, United Kingdom E.A. Arslan Giresun State Hospital, Giresun, Turkey
R. Arteaga Hospital Universitario Marques de Valdecilla, Santander, Spain S. Ayta University of Health Sciences, Haseki Training and Research Hospital,
Istanbul, Turkey
M. Baethmann Hospital Dritter Orden, Munich, Germany J.F. Bale The University of Utah, Salt Lake City, USA B. Banwell The Hospital for Sick Children, Toronto, Canada C. Barbot University of Porto, Portugal
N. Bass Rainbow Babies and Children's Hospital, Cleveland, USA T Ben-Omran Hamad Medical Corporation, Doha, Qatar
E. Bertini Bambino Gesù Children’s Hospital, Rome, Italy A. Biebl Children’s Hospital, Linz, Austria
A. Bley University Medical Center Hamburg Eppendorf, Hamburg, Germany L. Bollen Archipel Landrijt, Eindhoven, The Netherlands
E. Boltshauser Kinderspital Zürich, Zürich, Switzerland
J. Bonkowsky University of Utah School of Medicine, Salt Lake City, Utah, USA S. Bower Monash Medical Centre, Clayton Victoria, Australia
C. Brandt Bethel Epilepsy Centre, Mara Hospital, Bielefeld, Germany
A. Bravo Oro Hospital Central Dr. Ignacio Morones Prieto, San Luis Potosí, México C. Brenner Centro de Diagnósticos Brasil, SP, Brazil
J. Brown Queen Elizabeth Hospital, King's Lynn, United Kingdom K. Brožová Thomayer's Hospital, Prague, Czech Republic
E. Calado Hospital de Dona Estefania, Lisbon, Portugal M.M. Campos Unidade de Neurologia Pediatrica, Porto, Portugal M. Carmo Macário Centro Hospitalar e Unversitário de Coimbra, Portugal
L. Carr Great Ormond Street Hospital for Children, London, United Kingdom A.K.J. Chan University of Alberta, Edmonton, Canada
M. Chopra Royal Prince Alfred Hospital, Sydney, Australia A. Clarke St Georges Hospital, London, United Kingdom T. Covanis Children's Hospital Agia Sophia, Athens, Greece Y. Crow The Leeds Teaching Hospitals, Leeds, United Kingdom
B. Csányi Hospital Materno Infantil de Hospital Carlos Haya, Malaga, Spain I.F.M. de Coo Erasmus University Rotterdam, The Netherlands
M. Del Rossario Aldao Hospital de Ninõs V.J. Vilela, Rosario, Argentina M. D'Hooghe Sint-Jan Hospital, Brugge, Belgium
M. di Rocco Gaslini Institute, Genoa, Italy
T. Dzwiniel University of Alberta Hospital, Alberta, Canada
J El Helou Saint Joseph University, faculty of medicine, Beirut, Lebanon P. Fallon St George’s University Hospitals NHS FT, London, United Kingdom A. Feigenbaum The Hospital for Sick Children, Toronto, Canada
A. Ferlini University of Ferrara, Italy
J.M. Ferro Hospital de Santa Maria, Lisbon, Portugal A. Fiumara University of Catania, Italy
N.A. Fletcher Walton Centre for Neurology and Neurosurgery, Liverpool, United Kingdom J. Fluss Geneva University Hospitals, Switzerland
J.M. Fock University Medical Center Groningen, The Netherlands L. Fontenelle Children Hospital Rio de Janeiro University, Brazil
R.J. Forsyth Great North Children’s Hospital, Royal Victoria Infirmary, Newcastle upon Tyne, United Kingdom
W. Garming Kinder-und Jugendklinik Gelsenkirchen, Gelsenkirchen, Germany C. Garone University of Bologna, Italy
J. Gascon-Bayarri Bellvitge University Hospital, Barcelona, Spain
M. Geldhoff Academic Medical Center, Amsterdam, The Netherlands E. Glamuzina Great Ormond street Hospital, London, United Kingdom F. Góes Inst. Fernandes Figuerira, Fiocruz, Rio de Janeiro, Brazil A.L. Gomes Hospital de Santa Maria, Lissabon, Portugal
V. Gonzalez Hospital Sant Joan de Déu, Barcolona, Spain C. Guarda Hospital Garcia de Orta, Almada, Portugal
S. Gulati All India Institute of Medical Sciences, New Delhi, India S. Güler Bezmialem University Medical Faculty, Istanbul, Turkey
E. Gut Rehabilitation Hospital Kliniken Schmieder, Allensbach, Germany P. Hansen Netcare Waterfall City Hospital, Midrand, South Africa
R. Horvath Institute of Genetic Medicine, Newcastle University, Newcastle upon Tyne, United Kingdom
I.S. Ivanov Medical University - Plovdiv, St. George University Hospital, Plovdiv, Bulgaria S. Jagadeesh Mediscan Fetal care research foundation, Chennai, India
M. Kaczorowska Pomnik Centrum Zdrowia Dziecka, Warszawa, Poland P. Kankirawatana University of Alabama at Birmingham, Birmingham, AL, USA D. Karall Medical University of Innsbruck, Innsbruck, Austria
A. Kariminejad Kariminejad-Najmabadi Pathology & Genetics Center, Tehran, Iran M. Käselau Kinder- und Jugendmedizin, Harsewinkel, Germany
T. Kerr St George's Hospital, London, United Kingdom
M.D. King Temple Street Children's University Hospital and University College, Dublin, Ireland
M. Kolnikova Medical Faculty of Comenius University, Bratislava, Slovakia I. Krägeloh-Mann University Children's Hospital Tübingen, Germany
R. Kruschewsky Hospital Unversitário Professor Edgard Santos, Salvador, Bahia, Brazil A. Lehman University of British Columbia, Vancouver, Canada
Z. Liptai Szent László Hospital, Budapest, Hungary
J.H. Livingston The Leeds Teaching Hospitals, NHS Trust, Leeds, United Kingdom E. López-Laso University Hospital Reina Sofia, Córdoba, Spain
R.E. Madrid New York State Institute for Basic Research, Jervis Clinic, Staten Island, NY, USA
M. Maes University Hospital Ghent, Belgium K. Majdi University of Tripoli, Tripoli,Libya
A. Majumdar University Hospital Bristol, United Kingdom K. Maltby Frimpley Park Hospital, Surrey, United Kingdom H. Mandel Rambam Medical Center,Haifa, Israel
M. Matsui Otsu Red-Cross Hospital, Otsu, Japan
M. McEntagart St George’s University Hospitals NHS FT, London, United Kingdom M.A. McShane Oxford Children's Hospital, Oxford, United Kingdom
V. Mejaški Bošnjak Children’s Hospital, University of Zagreb, Croatia
S. Mercimek-Andrews The Hospital for Sick Children, Toronto, Ontario, Canada B.R. Miller The Children's Hospital, Denver, USA
A. Misbahuddin Essex Centre for Neurological Sciences, United Kingdom
I. Moroni IRCCS Foundation, Carlo Besta Neurological Institute, Milan, Italy R. Morton Derbyshire Children's Hospital, Derby, United Kingdom
C.F. Moura de Souza Hospital de Clinical de Porto Alegre, Brazil
N. Muelas Hospital Universitari i Politècnic La Fe, Valencia and Center for Biomedical Network Research on Rare Diseases (CIBERER), Spain
H. Mundy Evelina Children's Hospital, London, United Kingdom P. Munzar Hospital of Pardubice, Czech Republic
G. Musuwadi
Subramanian John Hunter Children's Hospital, New South Wales, Australia K. Naess Karolinska Unversity Hospital, Stockholm, Sweden
K. Naismith King's Cross Hospital, Dundee, United Kingdom J.P. Neau University of Poitiers, France
R.W. Newton Royal Manchester Children's Hospital, Manchester, United Kingdom M.J. Noetzel Washington University, St. Louis, Missouri, USA
B O'Brien Royal North Shore Hospital, Sydney, Australia
K. Okálová Children's University Hospital, Banska Bystrica, Slovakia N. Olabarrieta Hospital de Cruces, Barakaldo-Bizkaia, Spain
J.R. Østergaard Aarhus University Hospital, Aarhus, Denmark Q.S. Padiath University of Pittsburgh, USA
A. Pato Pato Hospital Povisa, Vigo, Pontevedra, Spain
J. Pera Jagiellonian University Medical College, Krakow, Poland R. Peralta Hospital de Santa Maria, Lisbon, Portugal
B. Pérez Dueñas Sant Joan de Déu Hospital, Barcelona, Spain
S. Perlman University of Iowa Carver College of Medicine, Iowa, USA M. Philippart Brain Research Institute, Los Angeles, USA
M. Pineda Institut Pediatric Hospital Sant Joan de Déu, Barcelona, Spain B. Plecko University Hospital Graz, Switzerland
K. Prass HELIOS Klinikum Bad Saarow, Germany J. Radić University Hospital Rijeka, Rijka, Croatia L. Régal Universitary Hospital Brussels, Belgium
J.D. Reggin Providence Sacred Heart Medical Center and Children's Hospital, Spokane, USA
D. Renaud Mayo Clinic, Rochester, USA
C.M. Rice University of Bristol and Southmead Hospital, Bristol, United Kingdom E. Rossignol Hôpital Ste-Justine et Centre de recherche, Montréal, Canada
J.P. Rubin Ann&Robert H.Lurie Children's Hospital of Chicago, USA D. Salgado Instituto Português de Oncologia, Lisboa, Portugal
F. Salvi IRCCS-Institute of Neurological Sciences of Bologna, Italy H. Sampaio Sydney Children's Hospital, Sydney, Australia
J. Sánchez Herrero Xeral-Cíes Hospital, Vigo, Spain M. Santos Centro hospitalar Porto, Porto, Portugal E. Santos Hospital Geral Santo António, Oporto, Portugal R. Schiffmann Baylor Research Institute, Dallas, USA
M. Sessa San Raffaele Hospital, Milan, Italy
S. Sharma Lady Hardinge Medical College, New Delhi, India J. Shearn Princess Ann Hospital, Southhampton, United Kingdom J. Shoffner Horizon Molecular Medicine, Atlanta, USA
H.S. Sivri Hacettepe University Children's Hospital, Ankara, Turkey J.S. Skranes Sørlandet Hospital, Arendal, Norway
C.G. Spaeth Cincinnati Children's Hospital Medical Center, Ohio, USA S.P. Sparagana Texas Scottish Rite Hospital for Children, Dallas, USA E. Storey Alfred Hospital, Victoria, Australia
L.S. Sveberg Oslo University Hospital, Oslo, Norway
M. Szlago IEM Head, Hosp de Niños R Gutierrez, Buenos Aires, Argentina L. Sztriha University of Szeged, Szeged, Hungary
B. Tatli Istanbul University, Istanbul, Turkey P. Tekturk Istanbul University, Turkey
M. Tennison University of North Carolina at Chapel Hill, USA
S. Tirupathi Royal Belfast Hospital for Sick Children, Belfast, Ireland L. Toledo Bravo de
Laguna Servicio Canario de la Salud, Gran Canaria, Spain C. Torres University of Rochester Medical Center, New York, USA M.A. Tuna Centro Hospitalar do Porto, Portugal
V. Udani P.D. Hinduja National Hospital & Medical Research Centre, Mumbai, India G. Uziel IRCCS Foundation, Carlo Besta Neurological Institute, Milan, Italy
A. Valverde Fernando Fonseca hospital, Lissabon, Portugal R. van Coster Gent University Hospital, Belgium
K. van Haren Stanford University Medical Center, Stanford, USA
A. Vanderver Children’s Hospital of Philadelphia, Perelman School of Medicine, University of Pennsylvania, USA
M. Vasconcelos Hospital Pediatrico Coimbra, Portugal
J. Vilchez Hospital Universitari i Politècnic La Fe, Valencia and Center for Biomedical Network Research on Rare Diseases (CIBERER), Spain
H. Vogt St. Elisabeth und St. Barbara Hospital, Halle, Germany J.C. von Kleist-Retzow University of Köln, Germany
E. Wassmer Birmingham Children's Hospital, United Kingdom A. Wedell Karolinska University Hospital, Stockholm, Sweden B. Weschke Charite University Hospital, Berlin, Germany
C. Wilson Starship Children's Hospital, Auckland, New Zealand S.S.N. Wong United Christian Hospital, Hong Kong
E. Wood IWK Health Care, Pediatric Neurology, Halifax, Canada Z. Yapici Istanbul University, Istanbul, Turkey
H. Yavuz Necmettin Erbakan University, Konya, Turkey S. Ygberg Karolinska Hospital, Stockholm, Sweden
