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BRIEF COMMUNICATION Evaluating patient satisfaction on an acute leukemia/bone marrow transplant day/night treatment unit: A pilot project

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171

Canadian OnCOlOgy nursing JOurnal • VOlume 26, issue 2, spring 2016 reVue Canadienne de sOins infirmiers en OnCOlOgie

FEA TUR ES /R U bR iq UE S

BrieF cOMMuNicAtiON

Evaluating patient satisfaction on an acute leukemia/bone marrow transplant day/night treatment unit: A pilot project

by Diana E. McMillan, Darlene Grantham, Nadia Zenchyshyn and Kendra L. Rieger

ABSTRACT

The transition from hospital to home fol- lowing hematopoietic stem cell trans- plantation increases the vulnerability for treatment challenges in patients, often resulting in unscheduled and costly hospi- tal re-admissions. Two Acute Leukemia/

Bone Marrow Transplant Day/Night (ALBMT) inpatient beds were established in 2011 at one tertiary care hospital to sup- port successful transition from inpatient cancer treatment to home. This pilot study aimed to investigate patient satisfaction feedback on information provision, treat- ment, and emotional support on this care innovation. Fourteen former unit patients participated. Survey responses indicated positive satisfaction for treatment and emo- tional support, and opportunities for infor- mation provision enhancement. Findings of this preliminary study exploring satis- faction of this novel inpatient initiative provide important insights into the patient experience, informing future research and practice.

iNtrODuctiON

T

he journey following hematopoietic stem cell transplantation includes complex physical and psychosocial treat- ment challenges (Crooks, Seropian, Bai, & McCorkle, 2014; Rueda-Lara &

Lopez-Patton, 2014). The transition from hospital to home can be a particularly vulnerable and stressful time (Crooks et al., 2014), with infection, gastrointestinal complications, and graft versus host dis- ease as primary reasons for unscheduled hospital re-admissions (Grant, Cooke, Bhatia, & Forman, 2005). Innovative care approaches are needed to provide effective patient support while decreasing unsched- uled and costly re-admissions (Grant et al., 2005; Grundy & Ghazi, 2009).

PurPOse

One acute oncology unit at a mid-west- ern tertiary care hospital converted two inpatient beds into the Acute Leukemia/

Bone Marrow Transplant Day/Night (ALBMT) Unit. This clinical innovation

was aimed to facilitate successful patient transition from inpatient cancer treat- ment to home, improving patient care and flow. Although in existence since 2011, the unit’s effectiveness from the patient perspective was unknown. A cross-sectional survey was developed to determine patient satisfaction in three areas: (a) treatment support, (b) emotional support, and (c) information provision.

MetHODs

Following ethical/institutional approv- al, a mail survey was sent to all patients on the ALBMT Unit between January 1, 2012, and December 31, 2013. An adapted version of the Princess Margaret Hospital Patient Experience Survey (Nyhof-Young, n.d.) was used to collect information on patient demographics, health history, and patient satisfaction. Tool adaptations included modification of some demo- graphic and health history questions, broadening of one treatment category, contextualizing team titles, and adding an item on readiness to transition to the unit. This 67-item survey includes open and closed, check box or Likert format questions. Descriptive statistics were cal- culated to provide an aggregate descrip- tion of the sample and response sets.

Open-ended responses were compiled using content analysis approaches.

results

Fourteen participants responded for a participation rate of 10.3%. Most par- ticipants were male (79%), above 40 years of age (86%), and diagnosed with cancer for two or more years (86%). All had received chemotherapy and or bio- therapy; some additional treatments included radiation and surgery.

Overall, responses were positive about care on the ALBMT Unit. The average satisfaction score was 9.2/10

ABOut tHe AutHOrs

Diana E. McMillan, RN, PhD, Associate Professor, College of Nursing, University of Manitoba

& Associate Professor of Clinical Practice, Health Sciences Centre, Winnipeg, MB,

Mail: Helen Glass Centre for Nursing, 89 Curry Place, University of Manitoba, Winnipeg, MB R3T 2N2; Tel: 204-474-7295; FAX: 204-474-7682.

Darlene Grantham, RN, MN, CHPCN(c), CON(c), Oncology Clinical Nurse Specialist, Health Sciences Centre, Winnipeg, MB

Mail: E648-820 Sherbrook Avenue, Winnipeg, MB R3A 1R9; Tel: 204-787-3917

Nadia Zenchyshyn, RN, BScN, CON(c), Manager of Patient Care, GD6 Acute Haematology Oncology/BMT/Therapeutic Apheresis/MB Bleeding Disorders, Mail: GD605B– Health Sciences Centre, Winnipeg, MB Tel: VM 204-787-7100 Pager: 204-931-2513 Kendra L. Rieger, RN, PhD(c), College of Nursing, University of Manitoba & Nursing Instructor, Red River College, Winnipeg, MB Mail: 218 Glenwood Crescent, Winnipeg, MB R2L 1J9. Tel: 204-295-0131, Email: Kendra.Rieger@umanitoba.ca

Contact author information: Diana.McMillan@umanitoba.ca

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172 Volume 26, Issue 2, sprIng 2016 • CanadIan onCology nursIng Journal reVue CanadIenne de soIns InfIrmIers en onCologIe

FEA TUR ES /R U bR iq UE S

(SD 0.9) for treatment support, 9.5/10 (SD 0.7) for emotional support, and 6.2/10 (SD 2.6) for information pro- vision. Four participants indicated they needed more support from one or more of the following profession- als: surgeons, occupational therapists, nutritionists, physiotherapists, and clin- ical assistants. Lower satisfaction was reported in some aspects of care, such as perception of readiness to transition to the unit (mean = 8.5/10, SD = 2.6) and information about the emotional impact of having cancer (mean = 7.4/10, SD = 2.8).

Qualitative comments echoed the range in patients’ satisfaction scores:

I am surrounded by a team who are equally concerned for my physical and emotional well-being.

I need emotional support from my team. They keep me upbeat.

I really felt I wasn’t ready to leave hospi- tal (seemed like they rushed it to make room for additional patients).

I have received excellent medical sup- port, but I have not required emotional support.

This preliminary study of a novel inpatient unit has provided important insights into patients’ satisfaction of care. Plans for a larger mixed methods study are underway with the aim to bet- ter explore information needs and care delivery strategies.

AcKNOWleDGeMeNt

The team would like to thank the participants for sharing their valuable insights. Kendra Rieger, RN, BN, PhD(c), is the grateful recipient of a Canadian Institutes of Health Research Frederick Banting and Charles Best Canada Graduate Scholarships Doctoral Award.

reFereNces

Crooks, M., Seropian, S., Bai, M., &

McCorkle, R. (2014). Monitoring patient distress and related problems before and after hematopoietic stem cell transplantation. Palliative and Supportive Care, 12(1), 53–61.

Grant, M., Cooke, L., Bhatia, S., &

Forman, S. (2005). Discharge and unscheduled readmissions of adult patients undergoing hematopoietic

stem cell transplantation:

Implications for developing nursing interventions. Oncology Nursing Forum, 32(1), E1–E8.

Grundy, M., & Ghazi, F. (2009). Research priorities in haemato-oncology nursing:

Results of a literature review and a Delphi study. European Journal of Oncology Nursing, 13(4), 235–249. doi:10.1016/j.

ejon.2009.03.002

Nyhof-Young, J. (n.d.). Princess Margaret Hospital Patient Experience Survey.

Princess Margaret Hospital: Toronto, ON.

Rueda-Lara, M., & Lopez-Patton, M. (2014).

Psychiatric and psychosocial challenges in patients undergoing haematopoietic stem cell transplants. International Review of Psychiatry, 26(1), 74–86.

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