DATA STORAGE FACT SHEET
% Author: Cynthia Van Gampelaere
% Date: 09/09/2019 1. Contact details
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1a. Main researcher
--- - name: Cynthia Van Gampelaere
- address: Henri Dunantlaan 2, 9000 Gent
- e-mail: cynthia.vangampelaere@ugent.be; cynthiavangampelaere@hotmail.com 1b. Responsible Staff Member (ZAP)
--- - name: prof. Liesbet Goubert
- address: Henri Dunantlaan 2, 9000 Gent - e-mail: liesbet.goubert@ugent.be
If a response is not received when using the above contact details, please send an email to data.pp@ugent.be or contact Data Management, Faculty of Psychology and Educational Sciences, Henri Dunantlaan 2, 9000 Ghent, Belgium.
2. Information about the datasets to which this sheet applies
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* Reference of the publication in which the datasets are reported: Van Gampelaere, C.,
Luyckx, K., van der Straaten, S., Laridaen, J., Goethals, E. R., Casteels, K., Vanbesien, J., den Brinker, M., Depoorter, S., Klink, D., Cools, M., & Goubert, L. (2019). Families with
pediatric type 1 diabetes: A comparison with the general population on child well-being, parental distress and parenting behavior. Pediatric Diabetes
* Which datasets in that publication does this sheet apply to?:
The sheet applies to all the data
3. Information about the files that have been stored
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3a. Raw data
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* Have the raw data been stored by the main researcher? [X] YES / [ ] NO
* On which platform are the raw data stored?
- [X] researcher PC
- [X] research group file server: pp05ghworksh - [ ] other (specify): ...
* Who has direct access to the raw data (i.e. without intervention of another person)?
- [X] main researcher - [X] responsible ZAP
- [ ] all members of the research group - [ ] all members of UGent
- [ ] other (specify): ...
3b. Other files
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* Which other files have been stored?
- [X] file(s) describing the transition from raw data to reported results. Specify:
o See method section manuscript
o Meta_Data_Readmefile_cleaning_CHAP1.docx;
o Meta_Data_Readmefile_analyses_CHAP1.docx - [X] file(s) containing processed data. Specify:
o RAW_DATASET_GENERALSAMPLE_8_12y.sav o RAW_DATASET_GENERALSAMPLE_2_7y.sav o RAW_DATASET_CLINICALSAMPLE_CHILD.sav o RAW_DATASET_CLINICALSAMPLE_PARENT.sav
[= raw datasets];
o COMBINED_GENERAL_CLINICALSAMPLE.sav
[= datasets ordered data, containing all data for current study];
o FINAL_GENERAL_CLINICALSAMPLE.sav [= processed datasets]
- [X] file(s) containing analyses. Specify: Information about the steps of the analyses is available in the file: Meta_Data_Readmefile_analyses_CHAP1.docx.
o Outputs of the ANCOVA analyses:
Output_ANOVA_2groups_correctionchildagefatherreport.spv
Output_ANOVA_3groups_correctionHbA1c.spv.
o Other oututes (e.g. demographics) are available in the manuscript and saved on my PC.
- [X] files(s) containing information about informed consent: blank copies of the IC's for both the general and the clinical sample (for each participating hospital) are saved:
o blankinformedconsent_parent_clinicalsample_Antwerpen.docx o blankinformedconsent_parent_clinicalsample_Brussel.docx o blankinformedconsent_parent_clinicalsample_Gent.docx o blankinformedconsent_parent_clinicalsample_Leuven.docx
o blankinformedconsent_parent_clinicalsample_SintJanBrugge.docx o blankinformedconsent_parent_clinicalsample_ZNAAntwerpen.docx o blankinformedassent_child_clinicalsample_allhospitals.docx
o blankinformedconsent_parent_generalsample.docx;blankinformedassent_child_g eneralsample.docx
o blankpassiveinformedconsent_parentforchild_generalsample.doc.
- [X] a file specifying legal and ethical provisions: the ethical approvals of all participating hospitals are stored and the ethical approval for the general population:
o EthicalApprovalLeuven_04052016_S58917.pdf
o EthicalApprovalAntwerpen_16061 2016 04 15 DGA UZA.pdf o EthicalApprovalBrussel 16-061_ICF.pdf
o EthicalApprovalGent_20160190.pdf o EthicalApprovalZNAPaolaAntwerpen.pdf o EthicalApprovalAZSintJan.pdf;
o EthicalApprovalAmendementAZSintJan_briefdd14-03-2017.pdf o EthicalApprovalAmendementZNAPaolaAntwerpen_ECUZGent.pdf o EthicalApproval_GeneralPopulation_2016_04.pdf.
- [X] file(s) that describe the content of the stored files and how this content should be interpreted. Specify: Information is available in the files:
o Meta_Data_Readmefile_cleaning_CHAP1.docx;
o Meta_Data_Readmefile_analyses_CHAP1.docx
- [X] other files. Specify: Protocol of the recruitment procedure of the IRRiCD project:
o PROTOCOL_IRRiCD_study_biblio_versie11_20190619.pdf
* On which platform are these other files stored?
- [X] individual PC
- [X] research group file server
- [X] other: the protocol of the recruitment procedure of the IRRiCD project is accessible at:
https://biblio.ugent.be/publication/8535160
* Who has direct access to these other files (i.e. without intervention of another person)?
- [X] main researcher
- [X] responsible ZAP
- [ ] all members of the research group - [ ] all members of UGent
- [ ] other (specify): ...
4. Reproduction
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* Have the results been reproduced independently?: [ ] YES / [X] NO v0.2
